By Joanne Finnegan @ Fierce Healthcare
A nine-year-old Pokemon-loving boy named Jonah is the inspiration for an initiative aimed at educating physicians about ultrarare diseases. Jonah was diagnosed in 2011 with one of those ultrarare diseases, Sanfilippo Type C, a genetic disorder for which there is currently no cure. His parents, Jill Wood and Jeremy Weishaar, founded the Jonah’s Just Begun foundation, which has just launched the game, called Mission Hide & Help.
Read the entire article: Fierce Healthcare